PARENTS, BE AWARE OF THE SYMPTOMS. An urgent warning is issued to parents regarding little-known signs that your baby may have a potentially fatal disease.
PARENTS are being urged to watch for signs that their child may have a potentially fatal disease.
Corinne Wardle, 38, noticed strange changes in her daughter Molly when she was only 12 weeks old.
Molly’s soft spots were growing, and she had a fixed eye gaze, a tilt to one side of her head, and vomiting patterns.
Mom is concerned. Corinne drove Molly to the hospital, where her worst nightmare came true.
The little girl had an ependymoma tumor on her brain, which covered almost the entire right side, according to scans.
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Corinne has now teamed up with the charity Brain Tumour Research to raise awareness about the terrible disease.
Corinne stated, “Molly couldn’t be put down for the first few months of her life and would cry every time – as if she was in pain.
“In retrospect, this was one of the symptoms that tied everything together.
“I tried various methods to eliminate conditions common in newborns.
“Her eyes were deviating outwards and her head was measuring off the charts, indicating that she had a CT scan.
“That’s when I got the worst news any parent could ever hear.”
Molly’s tumor was discovered in time, and she was taken to Alder Hey Hospital in Liverpool for emergency surgery to remove it.
Doctors had warned Corinne that if treatment had been delayed by just one or two days, she might not have survived.
Corrine, who also has two daughters, Leah, 12, and Kacey, 11, is now raising awareness for the charity Brain Tumour Research.
“I felt a huge relief when I was told the mass had been removed,” the mother from Flint, Flintshire, north Wales, added.
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Corrine immediately noticed a difference in Molly’s behavior, indicating that the surgery was successful.
She stated: “Molly lay on her back for the first time in her life, babbling out the window.
“I was overcome with emotion because she had been unable to be put down for the previous three months. It was incredible to witness.
“Especially after learning that if we had waited any longer, that would have most likely been her last day.”
Molly’s year-long clinical trial treatment is set to end this month.
On January 3, the MRI scan results came back clear, with no further growth of Molly’s tumor.
However, the treatment has left Molly with permanent injuries, and she now requires hearing aids.
Her mother is working with the charity Brain Tumour Research to raise awareness and support their mission to increase research funding.
Corinne, a five-year employee at the Countess of Chester Hospital, added: “This cancer, according to Molly’s oncologist, can be cured, but the evidence is limited.
“Her cancer, ependymoma, has subtypes that have very different outcomes and behaviors.
“While we have been assured that Molly’s outcome will be positive, it highlights the need for additional research into brain tumors.
“This frightens me based on the evidence I’ve gathered.
“Molly will most likely need MRI scans for the rest of her life because the tumor has a chance of returning.
“Despite the risks and uncertainty, she still has a chance, which gives me some relief.
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“She’s just learned to say ‘Mama,’ which makes me happy every time I hear it.”
“We’re grateful to Corinne for sharing Molly’s story and wish the family well as Molly nears the end of her treatment,” said Mel Tiley, community and development manager at Brain Tumour Research.
“Unfortunately Molly’s story is a reminder that brain tumors are indiscriminate and can affect anyone at any age.
“We will only be able to improve treatment options for patients and, ultimately, find a cure if we work together.”
According to Brain Tumour Research, one in every three people knows someone who has a brain tumor, and they kill more children and adults under the age of 40 than any other cancer.
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